ПОРОДИЧНО ОБРАЗОВАЊЕ ЗА ДЕЦУ СА СМЕТЊАМА РАЗВОЈА ИЗ СПЕКТРА АУТИЗМА У МАКЕДОНИЈИ

Family Education For Children With ASD In Macedonia

David Preece, Jasmina Troshanska

Research output: Contribution to conference typesAbstractResearchpeer-review

Abstract

It has been theoretically and practically proven that Autism Spectrum Disorder affects the whole family. Family education is very important for understanding child’s condition and behavior. That kind of education usually is developed in US and Western countries and it is typically unavailable in South-East Europe and Balkans. Therefore, the ESIPP (Equity and Social Inclusion through Positive Parenting) project has been established to develop and provide family education for Croatian, Cypriot and Macedonian families. Through the project 335 family members in total were trained and a parent education curriculum and locally differentiated materials were developed. Also recommendations for European policymakers were developed. This paper presents the findings of the study regarding the 70 Macedonian family members.
Family education was developed on the base of a specific research methodology that included pre-parent education questionnaires (n=70), post-parent education questionnaires (n=42) (both of which included a validated Quality of Life scale) and semistructured interviews (n=16).
Key findings relate to the impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support. The benefits of family education and its positive impact on parental happiness and relational issues are identified and sustainability of project through trained trainers is established.
Original languageMultiple languages
Pages44-45
Number of pages2
Publication statusPublished - 21 Feb 2019
EventDays of Special Educators and Rehabilitators 2019 - Zlatibor, Serbia
Duration: 21 Feb 201924 Feb 2019

Conference

ConferenceDays of Special Educators and Rehabilitators 2019
CountrySerbia
CityZlatibor
Period21/02/1924/02/19

Keywords

  • Parent education, evidence-based practice, autism spectrum disorder, family life, support.

Cite this

@conference{dae0479b8ca94ada8d94364a25f27627,
title = "ПОРОДИЧНО ОБРАЗОВАЊЕ ЗА ДЕЦУ СА СМЕТЊАМА РАЗВОЈА ИЗ СПЕКТРА АУТИЗМА У МАКЕДОНИЈИ: Family Education For Children With ASD In Macedonia",
abstract = "It has been theoretically and practically proven that Autism Spectrum Disorder affects the whole family. Family education is very important for understanding child’s condition and behavior. That kind of education usually is developed in US and Western countries and it is typically unavailable in South-East Europe and Balkans. Therefore, the ESIPP (Equity and Social Inclusion through Positive Parenting) project has been established to develop and provide family education for Croatian, Cypriot and Macedonian families. Through the project 335 family members in total were trained and a parent education curriculum and locally differentiated materials were developed. Also recommendations for European policymakers were developed. This paper presents the findings of the study regarding the 70 Macedonian family members.Family education was developed on the base of a specific research methodology that included pre-parent education questionnaires (n=70), post-parent education questionnaires (n=42) (both of which included a validated Quality of Life scale) and semistructured interviews (n=16).Key findings relate to the impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support. The benefits of family education and its positive impact on parental happiness and relational issues are identified and sustainability of project through trained trainers is established.",
keywords = "Parent education, evidence-based practice, autism spectrum disorder, family life, support.",
author = "David Preece and Jasmina Troshanska",
year = "2019",
month = "2",
day = "21",
language = "Multiple languages",
pages = "44--45",
note = "null ; Conference date: 21-02-2019 Through 24-02-2019",

}

ПОРОДИЧНО ОБРАЗОВАЊЕ ЗА ДЕЦУ СА СМЕТЊАМА РАЗВОЈА ИЗ СПЕКТРА АУТИЗМА У МАКЕДОНИЈИ : Family Education For Children With ASD In Macedonia . / Preece, David; Troshanska, Jasmina.

2019. 44-45 Abstract from Days of Special Educators and Rehabilitators 2019, Zlatibor, Serbia.

Research output: Contribution to conference typesAbstractResearchpeer-review

TY - CONF

T1 - ПОРОДИЧНО ОБРАЗОВАЊЕ ЗА ДЕЦУ СА СМЕТЊАМА РАЗВОЈА ИЗ СПЕКТРА АУТИЗМА У МАКЕДОНИЈИ

T2 - Family Education For Children With ASD In Macedonia

AU - Preece, David

AU - Troshanska, Jasmina

PY - 2019/2/21

Y1 - 2019/2/21

N2 - It has been theoretically and practically proven that Autism Spectrum Disorder affects the whole family. Family education is very important for understanding child’s condition and behavior. That kind of education usually is developed in US and Western countries and it is typically unavailable in South-East Europe and Balkans. Therefore, the ESIPP (Equity and Social Inclusion through Positive Parenting) project has been established to develop and provide family education for Croatian, Cypriot and Macedonian families. Through the project 335 family members in total were trained and a parent education curriculum and locally differentiated materials were developed. Also recommendations for European policymakers were developed. This paper presents the findings of the study regarding the 70 Macedonian family members.Family education was developed on the base of a specific research methodology that included pre-parent education questionnaires (n=70), post-parent education questionnaires (n=42) (both of which included a validated Quality of Life scale) and semistructured interviews (n=16).Key findings relate to the impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support. The benefits of family education and its positive impact on parental happiness and relational issues are identified and sustainability of project through trained trainers is established.

AB - It has been theoretically and practically proven that Autism Spectrum Disorder affects the whole family. Family education is very important for understanding child’s condition and behavior. That kind of education usually is developed in US and Western countries and it is typically unavailable in South-East Europe and Balkans. Therefore, the ESIPP (Equity and Social Inclusion through Positive Parenting) project has been established to develop and provide family education for Croatian, Cypriot and Macedonian families. Through the project 335 family members in total were trained and a parent education curriculum and locally differentiated materials were developed. Also recommendations for European policymakers were developed. This paper presents the findings of the study regarding the 70 Macedonian family members.Family education was developed on the base of a specific research methodology that included pre-parent education questionnaires (n=70), post-parent education questionnaires (n=42) (both of which included a validated Quality of Life scale) and semistructured interviews (n=16).Key findings relate to the impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support. The benefits of family education and its positive impact on parental happiness and relational issues are identified and sustainability of project through trained trainers is established.

KW - Parent education, evidence-based practice, autism spectrum disorder, family life, support.

M3 - Abstract

SP - 44

EP - 45

ER -