Families of children on the autism spectrum: experience of daily life and impact of parent education

Jasmina Stošić, Jasmina Frey Škrinjar, David Preece*

*Corresponding author for this work

Research output: Contribution to JournalArticlepeer-review

Abstract

Information and support for families of children on the autism spectrum is limited in south-east Europe. A three-year project – Equity and Social Inclusion Through Positive Parenting (ESIPP) – was established to develop and provide parent education (PE) in autism for families in Croatia, Cyprus and North Macedonia. This paper presents findings from Croatia regarding family life and the impact of PE. Data were collected via pre- and post-PE questionnaires and semi-structured interviews. Participants discussed the impact of autism on family life, the difficulty of obtaining a diagnosis, the importance of family support (and varying experience of formal support), common experience of stigma and social exclusion, and concerns for the future. The value and benefit of PE is identified. Recognition of its impact within Croatia has ensured its ongoing provision; and the argument is made that PE in autism is a valuable intervention in such contexts.
Original languageEnglish
Pages (from-to)205-221
Number of pages17
JournalSupport for Learning
Volume35
Issue number2
DOIs
Publication statusPublished - 24 May 2020

Keywords

  • Autism
  • Croatia
  • Families
  • Family life
  • Parent education

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