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An Ethnographic Study of Palliative and End-of-Life Care in a Nigerian Hospital: Impact of Education on Care Provision and Utilization

  • David A. Agom
  • , Tonia C. Onyeka
  • , Jude Ominyi
  • , Judith Sixsmith
  • , Sarah Neill
  • , Stuart Allen
  • , Helen Poole

Research output: Contribution to JournalArticlepeer-review

Abstract

Most clinicians receive little or no palliative care (PC) education. Similarly, patients and their families receive little or no information on PC. Our study explored education in PC, while examining for its impacts on service delivery and utilization from the perspective of health care professionals (HCPs), patients, and their families. An ethnographic approach was utilized to gather data from 41 participants. Spradley’s ethnographic analytical framework guided data analysis. Two themes identified were inadequate HCPs’ knowledge base and impact of service-users’ inadequate health education. The findings show that most HCPs had no formal education in PC, attributed to the lack of PC residency programs and the absence of educational institutions that provide such education. Patients and families also conveyed poor understandings of their illness and palliation, rooted in the HCP culture of partial disclosure of information about their diagnosis, care, and prognosis. Findings suggest a cultural shift that supports PC education for professionals is required to promote realist medical approach in the care for patients with life-limiting illnesses.
Original languageEnglish
Number of pages9
JournalSAGE Open
Volume10
Issue number3
Early online date1 Jul 2020
DOIs
Publication statusPublished - 8 Sept 2020

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

Keywords

  • communication
  • culture of care
  • patient education
  • decision-making
  • palliative care education
  • ethnography
  • health education
  • hospital
  • Nigeria

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