Navigating uncertain illness trajectories for young children with serious infectious illness: a modified grounded theory study.

Sarah Neill, Lucy Bray, Bernie Carter, Damian Roland, Enitan D Carrol, Tash Bayes*, Lucie Riches, Joanne Hughes, Poornima Pandey, Jennifer O'Donnell, Sue Palmer-Hill

*Corresponding author for this work

Research output: Contribution to JournalArticlepeer-review

Abstract

Background
Infectious illness is the biggest cause of death in children due to a physical illness, particularly in children under five years. If mortality is to be reduced for this group of children, it is important to understand factors affecting their pathways to hospital.
The aim of this study was to retrospectively identify organisational and environmental factors, and individual child, family, and professional factors affecting timing of admission to hospital for children under five years of age with a serious infectious illness (SII).
Methods
An explanatory modified grounded theory design was used in collaboration with parents. Two stages of data collection were conducted: Stage 1, interviews with 22 parents whose child had recently been hospitalised with a SII and 14 health professionals (HPs) involved in their pre-admission trajectories; Stage 2, focus groups with 18 parents and 16 HPs with past experience of SII in young children. Constant comparative analysis generated the explanatory theory.
Original languageEnglish
Number of pages41
JournalBMC Health Services Research
Publication statusAccepted/In press - 27 Jul 2022

Keywords

  • serious infectious illness
  • illness trajectories
  • parents
  • children under 5 years of age
  • Health professionals
  • Uncertainty

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