Parent’s information seeking in acute childhood illness: what helps and what hinders decision making?

Sarah Neill, Caroline H D Jones, Monica Lakhanpaul, Damian T Roland, Matthew J Thompson

Research output: Contribution to JournalArticle

Abstract

Context: Acute illness is a universal experience in early childhood. Parents find it difficult to determine whether or not their child equires medical care and seek information to inform their decision making. Little is known about parents’ information seeking behaviour and what helps or hinders their decision making. Objective: This study aimed to explore parents’ use of information resources during decision making in acute childhood illness at home. Design/Method : This exploratory qualitative study used focus groups and interviews to collect data from parents of children under 5 years of age. Setting and participants: Twenty-seven parents were recruited in the East Midlands, UK, in South Asian and Gypsy/Travelling communities, a Children’s Centre and a private sector day nursery. Findings: Parents’ pre-consultation information seeking was dominated by the internet, albeit with limited success. Parents liked easy to access, professionally validated and simple messages with access to more detailed information. Some parents always sought information through personal contact, whilst others did so when independent information seeking failed. When consulting a healthcare professional, parents liked to be given information to refer to later, although the information received varied. Importantly, neither hard copy nor the internet was accessible for parents with low levels of literacy. Discussion and conclusions: Although there is a wealth of information parents can access independently, our findings indicate a need for easy access to clearly signposted, professionally validated resources and available in a range of formats provided through different delivery systems. One size does not fit all.
Original languageEnglish
Pages (from-to)3044-3056
Number of pages13
JournalHealth Expectations
Volume18
Issue number6
Early online date20 Oct 2014
DOIs
Publication statusPublished - 1 Dec 2015

Fingerprint

Decision Making
Parents
Internet
Information Seeking Behavior
Roma
Private Sector
Nurseries
Focus Groups
Referral and Consultation
Interviews
Delivery of Health Care

Keywords

  • Acute childhood illness
  • decision making
  • information resources
  • information seeking
  • parents
  • safety netting

Cite this

Neill, S., Jones, C. H. D., Lakhanpaul, M., Roland, D. T., & Thompson, M. J. (2015). Parent’s information seeking in acute childhood illness: what helps and what hinders decision making? Health Expectations, 18(6), 3044-3056. https://doi.org/10.1111/hex.12289
Neill, Sarah ; Jones, Caroline H D ; Lakhanpaul, Monica ; Roland, Damian T ; Thompson, Matthew J. / Parent’s information seeking in acute childhood illness: what helps and what hinders decision making?. In: Health Expectations. 2015 ; Vol. 18, No. 6. pp. 3044-3056.
@article{7057c531fe134530832c7e0a290ec450,
title = "Parent’s information seeking in acute childhood illness: what helps and what hinders decision making?",
abstract = "Context: Acute illness is a universal experience in early childhood. Parents find it difficult to determine whether or not their child equires medical care and seek information to inform their decision making. Little is known about parents’ information seeking behaviour and what helps or hinders their decision making. Objective: This study aimed to explore parents’ use of information resources during decision making in acute childhood illness at home. Design/Method : This exploratory qualitative study used focus groups and interviews to collect data from parents of children under 5 years of age. Setting and participants: Twenty-seven parents were recruited in the East Midlands, UK, in South Asian and Gypsy/Travelling communities, a Children’s Centre and a private sector day nursery. Findings: Parents’ pre-consultation information seeking was dominated by the internet, albeit with limited success. Parents liked easy to access, professionally validated and simple messages with access to more detailed information. Some parents always sought information through personal contact, whilst others did so when independent information seeking failed. When consulting a healthcare professional, parents liked to be given information to refer to later, although the information received varied. Importantly, neither hard copy nor the internet was accessible for parents with low levels of literacy. Discussion and conclusions: Although there is a wealth of information parents can access independently, our findings indicate a need for easy access to clearly signposted, professionally validated resources and available in a range of formats provided through different delivery systems. One size does not fit all.",
keywords = "Acute childhood illness, decision making, information resources, information seeking, parents, safety netting",
author = "Sarah Neill and Jones, {Caroline H D} and Monica Lakhanpaul and Roland, {Damian T} and Thompson, {Matthew J}",
year = "2015",
month = "12",
day = "1",
doi = "10.1111/hex.12289",
language = "English",
volume = "18",
pages = "3044--3056",
journal = "Health Expectations",
issn = "1369-7625",
publisher = "Wiley",
number = "6",

}

Neill, S, Jones, CHD, Lakhanpaul, M, Roland, DT & Thompson, MJ 2015, 'Parent’s information seeking in acute childhood illness: what helps and what hinders decision making?', Health Expectations, vol. 18, no. 6, pp. 3044-3056. https://doi.org/10.1111/hex.12289

Parent’s information seeking in acute childhood illness: what helps and what hinders decision making? / Neill, Sarah; Jones, Caroline H D; Lakhanpaul, Monica; Roland, Damian T; Thompson, Matthew J.

In: Health Expectations, Vol. 18, No. 6, 01.12.2015, p. 3044-3056.

Research output: Contribution to JournalArticle

TY - JOUR

T1 - Parent’s information seeking in acute childhood illness: what helps and what hinders decision making?

AU - Neill, Sarah

AU - Jones, Caroline H D

AU - Lakhanpaul, Monica

AU - Roland, Damian T

AU - Thompson, Matthew J

PY - 2015/12/1

Y1 - 2015/12/1

N2 - Context: Acute illness is a universal experience in early childhood. Parents find it difficult to determine whether or not their child equires medical care and seek information to inform their decision making. Little is known about parents’ information seeking behaviour and what helps or hinders their decision making. Objective: This study aimed to explore parents’ use of information resources during decision making in acute childhood illness at home. Design/Method : This exploratory qualitative study used focus groups and interviews to collect data from parents of children under 5 years of age. Setting and participants: Twenty-seven parents were recruited in the East Midlands, UK, in South Asian and Gypsy/Travelling communities, a Children’s Centre and a private sector day nursery. Findings: Parents’ pre-consultation information seeking was dominated by the internet, albeit with limited success. Parents liked easy to access, professionally validated and simple messages with access to more detailed information. Some parents always sought information through personal contact, whilst others did so when independent information seeking failed. When consulting a healthcare professional, parents liked to be given information to refer to later, although the information received varied. Importantly, neither hard copy nor the internet was accessible for parents with low levels of literacy. Discussion and conclusions: Although there is a wealth of information parents can access independently, our findings indicate a need for easy access to clearly signposted, professionally validated resources and available in a range of formats provided through different delivery systems. One size does not fit all.

AB - Context: Acute illness is a universal experience in early childhood. Parents find it difficult to determine whether or not their child equires medical care and seek information to inform their decision making. Little is known about parents’ information seeking behaviour and what helps or hinders their decision making. Objective: This study aimed to explore parents’ use of information resources during decision making in acute childhood illness at home. Design/Method : This exploratory qualitative study used focus groups and interviews to collect data from parents of children under 5 years of age. Setting and participants: Twenty-seven parents were recruited in the East Midlands, UK, in South Asian and Gypsy/Travelling communities, a Children’s Centre and a private sector day nursery. Findings: Parents’ pre-consultation information seeking was dominated by the internet, albeit with limited success. Parents liked easy to access, professionally validated and simple messages with access to more detailed information. Some parents always sought information through personal contact, whilst others did so when independent information seeking failed. When consulting a healthcare professional, parents liked to be given information to refer to later, although the information received varied. Importantly, neither hard copy nor the internet was accessible for parents with low levels of literacy. Discussion and conclusions: Although there is a wealth of information parents can access independently, our findings indicate a need for easy access to clearly signposted, professionally validated resources and available in a range of formats provided through different delivery systems. One size does not fit all.

KW - Acute childhood illness

KW - decision making

KW - information resources

KW - information seeking

KW - parents

KW - safety netting

U2 - 10.1111/hex.12289

DO - 10.1111/hex.12289

M3 - Article

VL - 18

SP - 3044

EP - 3056

JO - Health Expectations

JF - Health Expectations

SN - 1369-7625

IS - 6

ER -