Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice

R. M. Dröes, R. Chattat, A. Diaz, D. Gove, M. Graff, K. Murphy, H. Verbeek, M. Vernooij-Dassen, L. Clare, A. Johannessen, M. Roes, F. Verhey, K. Charras, Chantal van Audenhove, Dympna Casey, Simon Evans, Andrea Fabbo, Manuel Franco, Debby Gerritsen, Marie Vittoria Gianelli & 19 others Manuel Gonςalves-Pereira, Fabrice Gzil, Hein van Hout, Anthea Innes, Yun Hee Jeon, Raymond Koopmans, Fritze Kristensen, Andrés Losada Baltar, Phil McEvoy, Joanna McHugh, Franka Meiland, Esme Moniz-Cook, Jacqueline Parkes, Joanna Rymaszewska, Nele Spruytte, Claire Surr, Marjolein de Vugt, Karin Wolf-Ostermann, Sytse Zuidema

Research output: Contribution to Book/Report typesChapterResearchpeer-review

Abstract

Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia. Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD). The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified. A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.
Original languageEnglish
Title of host publicationAging and Mental Health
PublisherRoutledge
Pages4-17
Number of pages14
ISBN (Print)1364-6915 (Electronic)\r1360-7863 (Linking)
DOIs
Publication statusPublished - 2 Jan 2017

Publication series

NameAging and Mental Health
Volume21

Fingerprint

Dementia
Consensus
Health
Research
Aptitude
Social Support
Direction compound
Sense of Coherence
Causality
Comorbidity
Chronic Disease
Delivery of Health Care

Keywords

  • Social health
  • capacity
  • dementia
  • effective interventions
  • self-management
  • social participation

Cite this

Dröes, R. M., Chattat, R., Diaz, A., Gove, D., Graff, M., Murphy, K., ... Zuidema, S. (2017). Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. In Aging and Mental Health (pp. 4-17). (Aging and Mental Health; Vol. 21). Routledge. https://doi.org/10.1080/13607863.2016.1254596
Dröes, R. M. ; Chattat, R. ; Diaz, A. ; Gove, D. ; Graff, M. ; Murphy, K. ; Verbeek, H. ; Vernooij-Dassen, M. ; Clare, L. ; Johannessen, A. ; Roes, M. ; Verhey, F. ; Charras, K. ; van Audenhove, Chantal ; Casey, Dympna ; Evans, Simon ; Fabbo, Andrea ; Franco, Manuel ; Gerritsen, Debby ; Vittoria Gianelli, Marie ; Gonςalves-Pereira, Manuel ; Gzil, Fabrice ; van Hout, Hein ; Innes, Anthea ; Hee Jeon, Yun ; Koopmans, Raymond ; Kristensen, Fritze ; Losada Baltar, Andrés ; McEvoy, Phil ; McHugh, Joanna ; Meiland, Franka ; Moniz-Cook, Esme ; Parkes, Jacqueline ; Rymaszewska, Joanna ; Spruytte, Nele ; Surr, Claire ; de Vugt, Marjolein ; Wolf-Ostermann, Karin ; Zuidema, Sytse. / Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. Aging and Mental Health. Routledge, 2017. pp. 4-17 (Aging and Mental Health).
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Dröes, RM, Chattat, R, Diaz, A, Gove, D, Graff, M, Murphy, K, Verbeek, H, Vernooij-Dassen, M, Clare, L, Johannessen, A, Roes, M, Verhey, F, Charras, K, van Audenhove, C, Casey, D, Evans, S, Fabbo, A, Franco, M, Gerritsen, D, Vittoria Gianelli, M, Gonςalves-Pereira, M, Gzil, F, van Hout, H, Innes, A, Hee Jeon, Y, Koopmans, R, Kristensen, F, Losada Baltar, A, McEvoy, P, McHugh, J, Meiland, F, Moniz-Cook, E, Parkes, J, Rymaszewska, J, Spruytte, N, Surr, C, de Vugt, M, Wolf-Ostermann, K & Zuidema, S 2017, Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. in Aging and Mental Health. Aging and Mental Health, vol. 21, Routledge, pp. 4-17. https://doi.org/10.1080/13607863.2016.1254596

Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. / Dröes, R. M.; Chattat, R.; Diaz, A.; Gove, D.; Graff, M.; Murphy, K.; Verbeek, H.; Vernooij-Dassen, M.; Clare, L.; Johannessen, A.; Roes, M.; Verhey, F.; Charras, K.; van Audenhove, Chantal; Casey, Dympna; Evans, Simon; Fabbo, Andrea; Franco, Manuel; Gerritsen, Debby; Vittoria Gianelli, Marie; Gonςalves-Pereira, Manuel; Gzil, Fabrice; van Hout, Hein; Innes, Anthea; Hee Jeon, Yun; Koopmans, Raymond; Kristensen, Fritze; Losada Baltar, Andrés; McEvoy, Phil; McHugh, Joanna; Meiland, Franka; Moniz-Cook, Esme; Parkes, Jacqueline; Rymaszewska, Joanna; Spruytte, Nele; Surr, Claire; de Vugt, Marjolein; Wolf-Ostermann, Karin; Zuidema, Sytse.

Aging and Mental Health. Routledge, 2017. p. 4-17 (Aging and Mental Health; Vol. 21).

Research output: Contribution to Book/Report typesChapterResearchpeer-review

TY - CHAP

T1 - Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice

AU - Dröes, R. M.

AU - Chattat, R.

AU - Diaz, A.

AU - Gove, D.

AU - Graff, M.

AU - Murphy, K.

AU - Verbeek, H.

AU - Vernooij-Dassen, M.

AU - Clare, L.

AU - Johannessen, A.

AU - Roes, M.

AU - Verhey, F.

AU - Charras, K.

AU - van Audenhove, Chantal

AU - Casey, Dympna

AU - Evans, Simon

AU - Fabbo, Andrea

AU - Franco, Manuel

AU - Gerritsen, Debby

AU - Vittoria Gianelli, Marie

AU - Gonςalves-Pereira, Manuel

AU - Gzil, Fabrice

AU - van Hout, Hein

AU - Innes, Anthea

AU - Hee Jeon, Yun

AU - Koopmans, Raymond

AU - Kristensen, Fritze

AU - Losada Baltar, Andrés

AU - McEvoy, Phil

AU - McHugh, Joanna

AU - Meiland, Franka

AU - Moniz-Cook, Esme

AU - Parkes, Jacqueline

AU - Rymaszewska, Joanna

AU - Spruytte, Nele

AU - Surr, Claire

AU - de Vugt, Marjolein

AU - Wolf-Ostermann, Karin

AU - Zuidema, Sytse

PY - 2017/1/2

Y1 - 2017/1/2

N2 - Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia. Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD). The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified. A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.

AB - Because the pattern of illnesses changes in an aging population and many people manage to live well with chronic diseases, a group of health care professionals recently proposed reformulating the static WHO definition of health towards a dynamic one based on the ability to physically, mentally and socially adapt and self-manage. This paper is the result of a collaborative action of the INTERDEM Social Health Taskforce to operationalize this new health concept for people with dementia, more specifically the social domain, and to formulate directions for research and practice to promote social health in dementia. Based on the expertise of the Social Health Taskforce members (N = 54) three groups were formed that worked on operationalizing the three social health dimensions described by Huber et al.: (1) capacity to fulfil potential and obligations; (2) ability to manage life with some degree of independence; (3) participation in social activities. For each dimension also influencing factors, effective interventions and knowledge gaps were inventoried. After a consensus meeting, the operationalizations of the dimensions were reviewed by the European Working Group of People with Dementia (EWGPWD). The social health dimensions could be well operationalized for people with dementia and are assessed as very relevant according to the Social Health Taskforce and EWGPWD. Personal (e.g. sense of coherence, competencies), disease-related (e.g. severity of cognitive impairments, comorbidity), social (support from network, stigma) and environmental factors (e.g. enabling design, accessibility) that can influence the person with dementia's social health and many interventions promoting social health were identified. A consensus-based operationalization of social health in dementia is proposed, and factors that can influence, and interventions that improve, social health in dementia identified. Recommendations are made for research and practice.

KW - Social health

KW - capacity

KW - dementia

KW - effective interventions

KW - self-management

KW - social participation

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U2 - 10.1080/13607863.2016.1254596

DO - 10.1080/13607863.2016.1254596

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SN - 1364-6915 (Electronic)\r1360-7863 (Linking)

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BT - Aging and Mental Health

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Dröes RM, Chattat R, Diaz A, Gove D, Graff M, Murphy K et al. Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice. In Aging and Mental Health. Routledge. 2017. p. 4-17. (Aging and Mental Health). https://doi.org/10.1080/13607863.2016.1254596