The impact of ASD on Macedonian families and their experience of parent education

Jasmina Troshanska, Vladimir Trajkovski, Filip Jurtoski, David Preece

Research output: Contribution to journalArticleResearchpeer-review

2 Downloads (Pure)

Abstract

Autism spectrum disorder (ASD) is identified as having a significant impact on family life. Educating parents of children with ASD about the condition benefits both child and family. However, such programmes are typically unavailable in South-east Europe. To address this, the ESIPP project developed, provided and evaluated parent education for Croatian, Cypriot and Macedonian families, training 335 family members. A parent education curriculum and locally differentiated materials were developed, as well as recommendations for European policymakers. The project was evaluated using a mixed methods programme evaluation methodology in which families were surveyed regarding their experience of family life and the impact of parent education. This paper presents the findings of the study regarding the 70 Macedonian family members. Pre-training (n=70) and post training questionnaires (n=42) were completed, and semi-structured interviews were undertaken (n=16). The impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support are discussed. The positive impact of attending parent education is identified, as is its impact on parental happiness and relational issues and the need for continued parent and professional education regarding ASD.
Original languageEnglish
Pages (from-to)127-138
Number of pages12
JournalJournal of Special Education and Rehabilitation
Volume19
Issue number3-4
DOIs
Publication statusPublished - 14 Apr 2019

Fingerprint

Macedonian
parent education
autism
experience
family member
parents
child benefit
education curriculum
happiness
social isolation
quality of life
questionnaire
methodology
interview
evaluation

Keywords

  • Parent education
  • autism spectrum disorder
  • family life
  • support
  • Macedonia

Cite this

Troshanska, Jasmina ; Trajkovski, Vladimir ; Jurtoski, Filip ; Preece, David. / The impact of ASD on Macedonian families and their experience of parent education. In: Journal of Special Education and Rehabilitation. 2019 ; Vol. 19, No. 3-4. pp. 127-138.
@article{7b726756752944dfae28023f5aaf5b25,
title = "The impact of ASD on Macedonian families and their experience of parent education",
abstract = "Autism spectrum disorder (ASD) is identified as having a significant impact on family life. Educating parents of children with ASD about the condition benefits both child and family. However, such programmes are typically unavailable in South-east Europe. To address this, the ESIPP project developed, provided and evaluated parent education for Croatian, Cypriot and Macedonian families, training 335 family members. A parent education curriculum and locally differentiated materials were developed, as well as recommendations for European policymakers. The project was evaluated using a mixed methods programme evaluation methodology in which families were surveyed regarding their experience of family life and the impact of parent education. This paper presents the findings of the study regarding the 70 Macedonian family members. Pre-training (n=70) and post training questionnaires (n=42) were completed, and semi-structured interviews were undertaken (n=16). The impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support are discussed. The positive impact of attending parent education is identified, as is its impact on parental happiness and relational issues and the need for continued parent and professional education regarding ASD.",
keywords = "Parent education, autism spectrum disorder, family life, support, Macedonia",
author = "Jasmina Troshanska and Vladimir Trajkovski and Filip Jurtoski and David Preece",
year = "2019",
month = "4",
day = "14",
doi = "10.19057/jser.2019.44",
language = "English",
volume = "19",
pages = "127--138",
journal = "Journal of Special Education and Rehabilitation",
issn = "1857-663X",
publisher = "de Gruyter",
number = "3-4",

}

The impact of ASD on Macedonian families and their experience of parent education. / Troshanska, Jasmina; Trajkovski, Vladimir; Jurtoski, Filip; Preece, David.

In: Journal of Special Education and Rehabilitation, Vol. 19, No. 3-4, 14.04.2019, p. 127-138.

Research output: Contribution to journalArticleResearchpeer-review

TY - JOUR

T1 - The impact of ASD on Macedonian families and their experience of parent education

AU - Troshanska, Jasmina

AU - Trajkovski, Vladimir

AU - Jurtoski, Filip

AU - Preece, David

PY - 2019/4/14

Y1 - 2019/4/14

N2 - Autism spectrum disorder (ASD) is identified as having a significant impact on family life. Educating parents of children with ASD about the condition benefits both child and family. However, such programmes are typically unavailable in South-east Europe. To address this, the ESIPP project developed, provided and evaluated parent education for Croatian, Cypriot and Macedonian families, training 335 family members. A parent education curriculum and locally differentiated materials were developed, as well as recommendations for European policymakers. The project was evaluated using a mixed methods programme evaluation methodology in which families were surveyed regarding their experience of family life and the impact of parent education. This paper presents the findings of the study regarding the 70 Macedonian family members. Pre-training (n=70) and post training questionnaires (n=42) were completed, and semi-structured interviews were undertaken (n=16). The impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support are discussed. The positive impact of attending parent education is identified, as is its impact on parental happiness and relational issues and the need for continued parent and professional education regarding ASD.

AB - Autism spectrum disorder (ASD) is identified as having a significant impact on family life. Educating parents of children with ASD about the condition benefits both child and family. However, such programmes are typically unavailable in South-east Europe. To address this, the ESIPP project developed, provided and evaluated parent education for Croatian, Cypriot and Macedonian families, training 335 family members. A parent education curriculum and locally differentiated materials were developed, as well as recommendations for European policymakers. The project was evaluated using a mixed methods programme evaluation methodology in which families were surveyed regarding their experience of family life and the impact of parent education. This paper presents the findings of the study regarding the 70 Macedonian family members. Pre-training (n=70) and post training questionnaires (n=42) were completed, and semi-structured interviews were undertaken (n=16). The impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support are discussed. The positive impact of attending parent education is identified, as is its impact on parental happiness and relational issues and the need for continued parent and professional education regarding ASD.

KW - Parent education

KW - autism spectrum disorder

KW - family life

KW - support

KW - Macedonia

UR - http://www.mendeley.com/research/impact-asd-macedonian-families-experience-parent-education-1

U2 - 10.19057/jser.2019.44

DO - 10.19057/jser.2019.44

M3 - Article

VL - 19

SP - 127

EP - 138

JO - Journal of Special Education and Rehabilitation

JF - Journal of Special Education and Rehabilitation

SN - 1857-663X

IS - 3-4

ER -