The impact of ASD on Macedonian families and their experience of parent education

Jasmina Troshanska, Vladimir Trajkovski, Filip Jurtoski, David Preece

Research output: Contribution to JournalArticle

Abstract

Autism spectrum disorder (ASD) is identified as having a significant impact on family life. Educating parents of children with ASD about the condition benefits both child and family. However, such programmes are typically unavailable in South-east Europe. To address this, the ESIPP project developed, provided and evaluated parent education for Croatian, Cypriot and Macedonian families, training 335 family members. A parent education curriculum and locally differentiated materials were developed, as well as recommendations for European policymakers. The project was evaluated using a mixed methods programme evaluation methodology in which families were surveyed regarding their experience of family life and the impact of parent education. This paper presents the findings of the study regarding the 70 Macedonian family members. Pre-training (n=70) and post training questionnaires (n=42) were completed, and semi-structured interviews were undertaken (n=16). The impact of ASD on quality of life, families’ experience of stigma and isolation, the inadequacy of professional support and the importance of family support are discussed. The positive impact of attending parent education is identified, as is its impact on parental happiness and relational issues and the need for continued parent and professional education regarding ASD.
Original languageEnglish
Pages (from-to)127-138
Number of pages12
JournalJournal of Special Education and Rehabilitation
Volume19
Issue number3-4
DOIs
Publication statusPublished - 14 Apr 2019

Keywords

  • Parent education
  • autism spectrum disorder
  • family life
  • support
  • Macedonia

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  • Profiles

    No photo of David Preece

    David Preece

    Person: Academic

    Impacts

    Parent Education Training programmes

    David Preece (Principal Investigator)

    Impact: Public policy impacts, Quality of life impacts, Social impacts, 03: Good Health and Well-Being (UN SDG), 04: Quality Education (UN SDG), 10: Reduced Inequalities (UN SDG)

    Activities

    • 3 Organising a conference or workshop

    Cyprus Multiplier Event (ESIPP)

    David Preece (Organiser)

    21 Mar 2018

    Activity: Participating in or organising a conference or workshopOrganising a conference or workshopResearch

    Zagreb Multiplier Event (ESIPP)

    David Preece (Organiser)

    13 Mar 2017

    Activity: Participating in or organising a conference or workshopOrganising a conference or workshopResearch

    Skopje Multiplier Event (ESIPP)

    David Preece (Organiser)

    1 Nov 2017

    Activity: Participating in or organising a conference or workshopOrganising a conference or workshopResearch

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