Current UK clinical practice in diagnosing dementia in younger adults: compliance with quality indicators in electronic health records from mental health trusts

Mary O'Malley, Jacqueline Parkes, Vasileios Stamou, Jenny LaFontaine, Jan R Oyebode, Jackie Campbell, Janet Carter

Research output: Contribution to JournalArticlepeer-review

Abstract

OBJECTIVES: To examine current UK practice in diagnosis of patients under 65 with young onset dementia, within 5 years of date of diagnosis, identified from electronic health records of 8 NHS mental health trusts.

METHODS: Patients diagnosed with young onset dementia were assembled from the UK-Clinical Record Interactive System, (UK-CRIS) using diagnosis of dementia as the index date. A pre-designed proforma, derived by international Delphi consensus from experts in the field in previous work, was used to assess components of the diagnostic assessment in 402 electronic health records across 8 NHS sites. Information was extracted on key aspects of clinical and physical examination according to both a minimum and gold standard.

RESULTS: Percentage compliance rates analysed by NHS site and statement, including compliance for site for minimum standard (11 statements), the additional 20 statements required for Gold standard, and the complete Gold standard set (31 statements) show that the additional 20 statements in the Gold standard had consistently higher compliance rates for every site compared to the minimum set.

CONCLUSION: Findings confirmed variation in clinical practice and identified commonly missed items in examination and enquiry compared to expert consensus. This suggests that a template proforma, which contains the key indicators for comprehensive assessment of dementia in young adults according to a quality standard could help support clinicians to improve record keeping and reduce gaps in knowledge.

Original languageEnglish
Pages (from-to)2233-2242
Number of pages10
JournalAging and Mental Health
Volume26
Issue number11
Early online date2 Sep 2021
DOIs
Publication statusPublished - 2 Nov 2022

Keywords

  • Psychiatry and Mental health
  • Geriatrics and Gerontology
  • Gerontology
  • Phychiatric Mental Health
  • case note audit
  • Young onset dementia
  • UK CRIS
  • quality indicators
  • UK practice
  • Humans
  • Quality Indicators, Health Care
  • United Kingdom
  • Mental Health
  • Dementia/diagnosis
  • Electronic Health Records

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