Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever

Josephine S van de Maat, Daphne van Klink, Anine den Hartogh-Griffioen, Eva Schmidt-Cnossen, Hester Rippen, Amber Hoek, Sarah Neill, Monica Lakhanpaul, Henriette A Moll, Rianne Oostenbrink

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Objectives: First, to explore parents’ views on and experiences of managing their febrile child and to assess their behaviour and needs when in search of information about fever; second, to develop and evaluate a hospital discharge information package about fever in children. Design: Mixed methods: (A) qualitative study with semistructured interviews and a focus group discussion (FGD) and (B) quantitative survey. Setting: Emergency department, non-acute hospital setting and day nursery in Rotterdam, The Netherlands. Participants: Parents of children <18 years (interviews, n=22) parents of children under 5 years (FGD (n=14), survey (n=38)). Intervention: Information package about fever in children (leaflet and website including videos). Outcome measures quantitative survey: Knowledge of fever and confidence in caring for a febrile child (Likert scale 0–5). Results: Parents found fever mostly alarming, especially high fever. Help-seeking behaviour was based on either specific symptoms or on an undefined intuition. When parents did not feel recognised in their concern or felt criticised, anxiety increased as well as the threshold to seek healthcare for future illnesses. Information was needed, especially for situations when the general practitioner or social network were less easily available. This information should be reliable, consistent, available in multiple formats and include advice on management of fever at home and precise referral to medical services. Parents reported improved knowledge about fever (p<0.05) and mentioned improved confidence in caring for a child with fever at home after consulting the information package. Conclusion: Parents of children with a fever visiting the hospital are concerned about specific symptoms or based on an undefined intuition. Rather than telling parents that they should manage their child’s illness at home, healthcare professionals should recognise parental intuition and provide clear information on alarming signs and potential diagnoses to empower parents in the management of their febrile child.
Original languageEnglish
Pages (from-to)1-9
Number of pages9
JournalBMJ Open
Volume8
Issue number8
DOIs
Publication statusPublished - 30 Aug 2018

Fingerprint

Fever
Parents
Intuition
Focus Groups
Interviews
Delivery of Health Care
Nurseries
Social Support
Netherlands
General Practitioners
Hospital Emergency Service
Referral and Consultation
Anxiety
Outcome Assessment (Health Care)

Keywords

  • infectious diseases
  • paediatrics
  • qualitative research

Cite this

van de Maat, J. S., van Klink, D., den Hartogh-Griffioen, A., Schmidt-Cnossen, E., Rippen, H., Hoek, A., ... Oostenbrink, R. (2018). Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever. BMJ Open, 8(8), 1-9. https://doi.org/10.1136/bmjopen-2018-021697
van de Maat, Josephine S ; van Klink, Daphne ; den Hartogh-Griffioen, Anine ; Schmidt-Cnossen, Eva ; Rippen, Hester ; Hoek, Amber ; Neill, Sarah ; Lakhanpaul, Monica ; Moll, Henriette A ; Oostenbrink, Rianne. / Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever. In: BMJ Open. 2018 ; Vol. 8, No. 8. pp. 1-9.
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abstract = "Objectives: First, to explore parents’ views on and experiences of managing their febrile child and to assess their behaviour and needs when in search of information about fever; second, to develop and evaluate a hospital discharge information package about fever in children. Design: Mixed methods: (A) qualitative study with semistructured interviews and a focus group discussion (FGD) and (B) quantitative survey. Setting: Emergency department, non-acute hospital setting and day nursery in Rotterdam, The Netherlands. Participants: Parents of children <18 years (interviews, n=22) parents of children under 5 years (FGD (n=14), survey (n=38)). Intervention: Information package about fever in children (leaflet and website including videos). Outcome measures quantitative survey: Knowledge of fever and confidence in caring for a febrile child (Likert scale 0–5). Results: Parents found fever mostly alarming, especially high fever. Help-seeking behaviour was based on either specific symptoms or on an undefined intuition. When parents did not feel recognised in their concern or felt criticised, anxiety increased as well as the threshold to seek healthcare for future illnesses. Information was needed, especially for situations when the general practitioner or social network were less easily available. This information should be reliable, consistent, available in multiple formats and include advice on management of fever at home and precise referral to medical services. Parents reported improved knowledge about fever (p<0.05) and mentioned improved confidence in caring for a child with fever at home after consulting the information package. Conclusion: Parents of children with a fever visiting the hospital are concerned about specific symptoms or based on an undefined intuition. Rather than telling parents that they should manage their child’s illness at home, healthcare professionals should recognise parental intuition and provide clear information on alarming signs and potential diagnoses to empower parents in the management of their febrile child.",
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van de Maat, JS, van Klink, D, den Hartogh-Griffioen, A, Schmidt-Cnossen, E, Rippen, H, Hoek, A, Neill, S, Lakhanpaul, M, Moll, HA & Oostenbrink, R 2018, 'Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever', BMJ Open, vol. 8, no. 8, pp. 1-9. https://doi.org/10.1136/bmjopen-2018-021697

Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever. / van de Maat, Josephine S; van Klink, Daphne; den Hartogh-Griffioen, Anine; Schmidt-Cnossen, Eva; Rippen, Hester; Hoek, Amber; Neill, Sarah; Lakhanpaul, Monica; Moll, Henriette A; Oostenbrink, Rianne.

In: BMJ Open, Vol. 8, No. 8, 30.08.2018, p. 1-9.

Research output: Contribution to journalArticleResearchpeer-review

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AU - van de Maat, Josephine S

AU - van Klink, Daphne

AU - den Hartogh-Griffioen, Anine

AU - Schmidt-Cnossen, Eva

AU - Rippen, Hester

AU - Hoek, Amber

AU - Neill, Sarah

AU - Lakhanpaul, Monica

AU - Moll, Henriette A

AU - Oostenbrink, Rianne

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N2 - Objectives: First, to explore parents’ views on and experiences of managing their febrile child and to assess their behaviour and needs when in search of information about fever; second, to develop and evaluate a hospital discharge information package about fever in children. Design: Mixed methods: (A) qualitative study with semistructured interviews and a focus group discussion (FGD) and (B) quantitative survey. Setting: Emergency department, non-acute hospital setting and day nursery in Rotterdam, The Netherlands. Participants: Parents of children <18 years (interviews, n=22) parents of children under 5 years (FGD (n=14), survey (n=38)). Intervention: Information package about fever in children (leaflet and website including videos). Outcome measures quantitative survey: Knowledge of fever and confidence in caring for a febrile child (Likert scale 0–5). Results: Parents found fever mostly alarming, especially high fever. Help-seeking behaviour was based on either specific symptoms or on an undefined intuition. When parents did not feel recognised in their concern or felt criticised, anxiety increased as well as the threshold to seek healthcare for future illnesses. Information was needed, especially for situations when the general practitioner or social network were less easily available. This information should be reliable, consistent, available in multiple formats and include advice on management of fever at home and precise referral to medical services. Parents reported improved knowledge about fever (p<0.05) and mentioned improved confidence in caring for a child with fever at home after consulting the information package. Conclusion: Parents of children with a fever visiting the hospital are concerned about specific symptoms or based on an undefined intuition. Rather than telling parents that they should manage their child’s illness at home, healthcare professionals should recognise parental intuition and provide clear information on alarming signs and potential diagnoses to empower parents in the management of their febrile child.

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van de Maat JS, van Klink D, den Hartogh-Griffioen A, Schmidt-Cnossen E, Rippen H, Hoek A et al. Development and evaluation of a hospital discharge information package to empower parents in caring for a child with a fever. BMJ Open. 2018 Aug 30;8(8):1-9. https://doi.org/10.1136/bmjopen-2018-021697