The status of current clinical practice in diagnosis of young onset dementia in England: Findings from The Angela Project

Janet Carter, Mary O'Malley, Jackie Campbell, Vasileios Stamou, Jenny H. La Fontaine, Jan Oyebode, Jacqueline Parkes

Research output: Contribution to JournalAbstractpeer-review

Abstract

Abstract
Background
The presentation of dementia in young people is complex and challenging, often resulting in delays in receiving a confirmed diagnosis and appropriate support. A recent Delphi consensus has derived minimum and gold standards for the diagnostic workup that international expert clinicians consider best practice. This presentation will review the results of a large case note audit that assessed compliance with these standards in current UK clinical practice.

Method
403 patient records of young people who received a diagnosis of dementia in the last 5 years were audited according to our minimum and gold standards. Records were obtained from memory services within eight different National Health Service locations from across England.

Result
We found significant differences between the sites in meeting the standards, though all sites had median scores that were below 50% compliance for both the minimum and gold standard. This suggests that current UK assessments fail to reach an acceptable standard.

Conclusion
Further consultation with clinicians and young people with dementia is necessary to understand local impediments to meeting an acceptable standard and to identify interventions that can lead to improvement.
Original languageEnglish
JournalAlzheimer's and Dementia
Volume16
Issue numberS6
DOIs
Publication statusE-pub ahead of print - 7 Dec 2020

Keywords

  • Health Policy
  • Developmental Neuroscience
  • Epidemiology
  • Cellular and Molecular Neuroscience
  • Geriatrics and Gerontology
  • Psychiatry and Mental health
  • Clinical Neurology

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